Thursday, April 16, 2020

My husband has Alzheimer's Disease

I"ve been away from blogging for a few years now.    They have been busy years for sure.

I hope somehow I can help other spouses on this same journey.  It is not an easy one.  But it is also not a totally hopeless and sorrowful one either.

My Darling and I have been on this journey a long time.  I actually have to look "the date" up which I will do later.   I know it is atleast seven years.  Serious symptoms of dementia began cropping up a good nine years ago.   Our journey continues.

This post is a bit hodge podge as I don't know where to begin.    The questions I had in the beginning were "how long"?  What to expect?  Is it always as "doom and gloom" as so many were telling me.

The most important things I have learned so far are.

EVERY Alzheimer's case truly IS different.   What we are living with is not necessarily what you will encounter.

The "average" time is seven years.  This is only an average.  Don't count the time.

There are stages.  Sometimes several "stages" going on at the same time.   Don't keep checking stages.    again, EVERY case is different.

There IS JOY in this journey.

and the most important thing. LIVE in THE MOMENT.  The right now. DO as much as you possibly can do, together.  Especially from the start.    Do not allow all the "doom and gloom" things that people who think they are helping you, are telling you.  It's NOT all necessarily true.

That's about it for today.  

I am going to try to give an update on how TODAY is.  as often as possible.  Some days are very good, others most frustrating, and yes, sometimes a day is out and out awful.   But there is always something to laugh about each day.

Today, while showering my Darling, we had a lot of fun with the sprayer.   and I did not flood the bathroom.   He is now happily sitting in the living room, by the front picture window, watching Hee Haw.  I know as I can hear a very loud HEE HAWWWW coming from his lips as he enjoys the show.
THIS is a very good thing.

and on we go.